A couple of weeks ago, I wrote about the launch of the new consultation paper for the development of the National Diabetes Strategy. The online feedback for this paper is open until Sunday 17 May.
The reason for the consultation is to collect feedback from the community about the paper – specifically the draft Strategic Framework for Action. If you turn to page 7 of the paper, you will find a table which provides a summary of the strategic framework, (it is also at the end of this post).
It is really important for people with diabetes to provide feedback about what living with diabetes is all about and what does and doesn’t work in our healthcare system. The consultation process is your opportunity to provide information that will further inform the development of the final strategy.
As outlined in my original blog post, there are five goals:
- Reduce the prevalence and incidence of people developing type 2 diabetes
- Promote earlier diabetes detection
- Reduce the occurrence of diabetes-related complications and improve quality of life among people with diabetes
- Reduce the impact of diabetes in Aboriginal and Torres Strait Islander peoples and other high risk groups
- Strengthen prevention and care through research, evidence and data
The document explains each goal, then explains the areas for action (that is, what will be addressed) and then some suggested ways to actually achieve each of the goals. The document goes into great lengths about each goal, so you may only be interested in reading the sections that you believe are relevant to you and your diabetes.
The online questionnaire is actually not too difficult to work through. You can remain anonymous if you like and you can also start the survey and come back to finish it at later time. Also, you only need to complete the areas that are of particular interest to you.
Whilst I work at Diabetes Victoria and will be involved in the organisation’s response, I will also be completing the survey as an individual living with type 1 diabetes. For me personally, the areas of specific relevance to my life with diabetes are goals 2, 3 and 5, so I have already read through the related sections of the paper and made a few notes about what I would like to say.
The same questions are asked for each goal and you can answer in as much detail (up to 500 words per question) as you like. When answering, think about what has been of particular help for you and what you think could be improved. For example, think about your diagnosis story and how that played out. Or, think about any programs or events you have attended that have (or have not) provided you with useful and usable diabetes information and management techniques.
The questions for each section are:
a) Which of the areas for action described for this goal are most appropriate and why?
b) Are there any additional actions you would you like to see the governments and/or other stakeholders take and why?
a) Please describe any existing programmes, initiatives or activities relevant to this goal that you think are working well and why? (please indicate if you are aware of an evaluation report and how it may be obtained).
b) Are there any existing activities, services or systems relevant to this goal that you think are not working well? (please explain why, and discuss any barriers to their effectiveness).
The paper outlines some potential ways to measure Australia’s progress towards this goal. What do you think would be the most appropriate ways to measure this goal and why?
So, why is it important for you to take the time and be part of the consultation process?
Because this is the point where people with diabetes are invited to be involved. This is where you get to speak directly to Government about your experiences and offer your suggestions. Diabetes Victoria will, of course, be considering the consumer perspective in our response, but we need as many of you as possible to provide your own thoughts directly as this strengthens the consumer view. Yes, we can argue until we are blue in the face that there should have been consumer involvement earlier on – believe me, I fight that fight most days! But the way it stands is that THIS is the time where we get to provide our input.
Don’t waste that opportunity.
The Consultation Paper for the Development of the Australian National Diabetes Strategy and the online consultation survey can be accessed from this page.
Renza Scibilia is the Manager of Type 1 Diabetes and Community Programs at DA–Vic. She has lived with type 1 diabetes since 1998. The opinions and thoughts expressed in her occasional blogs are her own.
Renza blogs regularly at Diabetogenic about real life with type 1 diabetes and you can also follow her on Twitter @RenzaS
TABLE 1 Summary of the Strategic Framework
||Areas for action
||Potential ways to measure Australia’s progress towards this goal
|1. Reduce the prevalence and incidence of people developing type 2 diabetes
- Reduce the prevalence of modifiable risk factors in the general population
- Identify and provide prevention programmes to people with prediabetes
- Ensure pregnant women and children get optimal care
- The percentage of the population developing or with diabetes
- The percentage of the population that is overweight or obese
- Annual number of cases of gestational diabetes diagnosed, and the number of these women who receive follow-up preventative services
|2. Promote earlier detection of diabetes
- Improve detection in primary care for type 2 diabetes
- Increase awareness of type 1 diabetes among healthcare providers and the community
- The number of people screened for risk of diabetes annually
- The percentage of people with type 1 diabetes who present with diabetic ketoacidosis on diagnosis
|3. Reduce the occurrence of diabetes-related complications and improve quality of life among people with diabetes
- Nationally agreed clinical guidelines and local care pathways
- Consumer engagement and self-management
- Quality improvement processes
- Information and communication technology
- Medicines and devices
- Workforce capacity
- Funding reform and incentives
- Mental health care for people with diabetes
- Transition from child to adult services
- High-quality hospital care
- The number of people having screening for complications
- The percentage of people with diabetes with high HbA1c, cholesterol or blood pressure
- The incidence of complications per thousand people with diabetes
- Quality of life scores for people with diabetes
|4. Reduce the impact of diabetes in Aboriginal and Torres Strait Islander peoples and other high risk groups
- Aboriginal and Torres Strait Islander peoples
- Culturally and linguistically diverse people
- Older Australians
- Australians living in rural and remote areas
- The number of new cases of diabetes diagnosed each year, per thousand people, in groups at higher risk
- The number of people from groups at higher risk who receive annual testing for complications
- The percentage of people with diabetes in groups at higher risk with high HbA1c, cholesterol or blood pressure
- The incidence of complications per thousand people with diabetes from groups at higher risk
- Quality of life scores for higher risk people with diabetes
|5. Strengthen prevention and care through research, evidence and data
- National research agenda
- Data linking
- Number of diabetes publications
- Progress against key milestones in developing a national research agenda
- Progress against key milestones in developing national datasets